Home
About this site
Parkinson’s Disease
Information about PD
PD Internet Community
Organisations
UK Interest
Promoting Internet use
The Internet
Interesting web sites
General Information
Other
Assistive Technology
General Medical information
Resources for Carers
Charity/non-profit Issues
The Adrienne Coles Memorial Trust

Search this site

Personality changes and depression in PD


Personality changes and depression in PD


Posted to the PARKINSN list by Jim Slattery

 A major problem with any chronic illness is that it often means that  one
party has to retire from the workforce earlier than planned for. Spouses  are
thrown together for much longer periods of the day than was the case  when
one of them was working.  As one woman remarked "I married him  for better or
for worse, but not for lunch!)" <grin>.

This  enforced 'togetherness' can be very trying for both parties, unless it
has  been discussed and planned for. For example, a man who has always had  a
company vehicle available to him throughout the day, now finds  himself
relying on access to the family car.  Meanwhile, his wife now  finds that
where the family car was available to her at any time during the  day, now
finds that she has to negotiate with her husband for  access.

Similar types of scenario apply to parents and children.  In  essence, it
means that both parties, sufferer and care-giver, are forced into  each
others company for longer periods each day, and that there are less  moments
of privacy for each.

Then there is the problem of increased  work load for the care-giver, and
increased idleness for the sufferer.   Both of these aspects can lead to
increased aggression and frustration unless  controlled.

These aspects of lessened privacy and increasing frustration  are not given
enough prominence in discussions concerning depression.  A  sudden and
dramatic change of lifestyle, especially if perceived to be for  the worse,
will precipitate depressive episodes in the most reasonable of  people.

The answer for those newly placed in, or contemplating this  situation, is to
make themselves aware of the needs of both parties, and to  plan a reasoned
and fair distribution of workloads, and access to facilities,  together with
a planned approach to 'oases of privacy', where each can  recover from
feelings of frustration, etc., consider the happenings of the  day in a quite
and non-threatening atmosphere, and generally 'get one's  breath back.'

Where the situation has existed for some time, it will  often be necessary
for an unbiased third party, who has the welfare of both  parties at heart,
to step in.  This person may be another family member,  a minister of
religion, a social worker, etc.  That person must have  good 'person' skills,
a working knowledge of the problems involved, and a  sincere interest in the
wellbeing of both parties.

The worst possible  situation is where a third party is biased on behalf of
one party.  This  can only worsen the problem.  If that seems to be the only
option, it is  time to seek professional help.

Sometimes respite care is needed, mainly  for the care-giver to relax in an
environment away from responsibility.   This can also assist the sufferer,
who can gain time to re-assess the  relationship, and in a non-threatening
atmosphere, to plan ways of decreasing  tension.  Both parties also need time
to talk things over with a  sympathetic listener, who nevertheless must not
take sides, but attempt to  find a solution agreeable to both parties, an
'honest broker.'  The  person must also not be perceived as 'interfering', by
either  party.

Realising the possibilities of the dangerous situations above, and  the
deleterious affect on the health and emotional stability of the  parties,
family members and friends can often forestall problems before they  occur.

Jim - 59/13 - Sinemet,  Eldepryl
--------------------------------------
Jim Slattery - jslat@ix.net.au
Central West PD Web
http://www.bec.net.au/~cwpdg/
--------------------------------------

This site is © Copyright The Adrienne Coles Memorial Trust 2000, 2001, 2002.
The Adrienne Coles Memorial Trust is a Registered Charity with Charity Commission for England & Wales, registration number 1084973.
For more information and suggestions email the webmaster.